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Old 08-28-2008, 10:19 AM
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Default gastroparesis and diabetes please help us?

I am writing as I am seriously concerned for my mother who is 43 and has suffered with diabetes since she was 12 years old, in the last 10 years she has had extremely ill health, However her diabetes is well controlled and always has been, however she as spells of ill health threw vomiting constantly sometimes she can be fine some several weeks and then she will get an attack of vomiting, she is taking a medication called Domperidom prescribed by her GP However again she is in hospital again, nobody at the hospital seems to be interested or understand her illness andnever has, today i went to visit her she has been in for 4 days now constantly vomiting, she looked like a dead person, she couldn't speak, the drip that they had in her wasn't going in her arm and had leaked all over her bed, she didnt have a drink of water near by, and her blood sugar was 24... I am ever increasing worried that my mum is going to die from the illness as nobody seems to care or no what it is or how to prevent it or help her when she gets ill, my own family had to self diagnose her 5 years ago after every doctor she seen said that it was due to her being a no compliant diabetic now that her GP agrees that she has Gastroparesis, why is it that she is still always suffering.. I need help, i need somebody who knows about this illness to help us as a family, my mum is only 43 and a grandmother and i am so worried that she will die from this and the stress of never receiving proper care or guidance.
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Old 08-28-2008, 10:56 AM
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Seriously - the first thing to do is make an ENORMOUS fuss at the hospital.
If you find her in that state again - stand in the middle of the ward and scream. Nothing gets their attention like someone upsetting the status quo.
I'm sorry, I know nothing of Gastroparesis - but any hospital that lets a diabetic's blood sugar get up to 24 needs shooting. It is all well & good if she allows her levels to do that outside the hospital - it is unforgiveable for them to do it.
I also suggest you talk to a solicitor and ask them to send a letter stating that your mother is not being well vared for and asking for direction to the consultant that is dealing with her (the upshot being that if one isn't dealing with her - they ought to be and maybe this will make them pay attention).
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Old 08-28-2008, 12:06 PM
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hi, im sorry to hear this, but shes in hospital and shes in the best place, with diabetes, its the pancreas that gets affected, and over the years it puts a major strain on all of your organs, just have to play the waiting game , and im sure she will be ok,
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Old 08-28-2008, 01:24 PM
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You need refering to a new hospital, i was under a hospital for 4 years that were constantly telling me it was "in my head" and that i had nothing wrong with me, which wasn't true. Now, i go to a new hospital and i've had 2 major surgeries which have almost fixed the problem. Try and get started on the referal process now because it can take months, then when you get accepted by the hospital and you have to wait something like 4 months for an appointment, ring the doctors secutary and make sure they know how sick your mum is and that she cannot wait, you understand there are other people but you need to stress how important this is because all they will know, is what the other hospital has told them and your GP. You have to make it known shes very sick. Otherwise with the NHS, you get no where. I'm sure your mum will be fine once she is treated correctly, and not fobbed off. I was, my new hospital has done so much for me. Don't give up just yet, there is ALWAYS someone out there who can help you.

Also, write up a complaint to the hospital, that's disgusting. No water and a drip which is not correctly working will result in her getting dehdyrated. I've learned you get know where with the NHS being soft, they walk all over you other wise. As soon as me and my family kicked up a fuss about the way i was being treated, especially as i was under a childrens team, they changed dramatically. Do A LOT of research into your mums illness so you can challenge the doctor and KNOW what you are talking about, that way they think "uh oh i can't fob her off, she knows what shes talking about".

Heres a few links, hopefully they help:
http://www.ucsfhealth.org/adult/medical_services/gastro/gastroparesis/conditions/gastro/treatments.html
http://www.ucsfhealth.org/adult/medical_services/gastro/gastroparesis/conditions/gastro/treatments.html
http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis/index.htm
http://www.gicare.com/pated/ecdgs45.htm

I hope your mum gets well soon!
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Old 08-28-2008, 09:16 PM
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There's no easy answer for you here. Gastroparesis is a serious, and often difficult to treat condition. There is no definitive cure, and people have tried simple medication such as domperidone, to more extreme measures such as gastric pacing. Unfortunately, maintaining hydration, and trying to keep an eye on blood sugars is the best one can do, whilst hoping the situation spontaneously resolves. I appreciate your frustration at healthcare providers, but it is often a result of the current inadequacies of treatment. Sadly, gastorparesis is associated with a significantly reduced life expectancy.
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