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Old 07-25-2008, 10:51 AM
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Join Date: Jul 2008
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Default Medical help. Gastroparesis. Back. Chest.?

Hi there.

I have had gastroparesis and esinophilic oesophagitis for over a year now which has been controlled.

Then i started getting back pain and the doctor said it was muscle, so i saw a physio which hasnt really been helping.

Lately ive been getting chest pain too. Its like a sudden onset of pain in the chest, which gets deeper and deeper and then either i cant breathe and pass out (happend yesterday), or it goes away.
I dont know what it is. Its happened about 14x maybe, but i only passed out yesterday because of breathing.

The doctor referred me to a specialist but hes on holidays.
The dietitican, physio, mum, dad, doctor and naturopath cant help me.

Can you?
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Old 07-25-2008, 04:26 PM
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I also have gastroparesis . I have had it for 7 years so far and it continues to get worse from year to year. My first gastric emptying study was 6-8 hours and now it is 24-28 hours. I can't eat food. I live on strained baby fruit. I do not have the usual symptoms so the Drs call mine Idiopathic Gastroparesis. My bowels also shut down 7 years ago. I am not diabetic and I have the pain in my stomach, no where else. I can't get a Dr to see me anymore, they say I am too bad and don't know any other treatments to try. Nothing has worked. They were going to put the gastric pacemaker in but said since I did not have nausea & vomiting the pacemaker would not work for me since that is what it was designed for. They tell me I need a motility doctor but so far none will see me. Once they see my records, I never hear from them again. I am very malnourished, dehydrated and my muscles are so weak I can't twist the lid off of a soda (pop) bottle. Lack of nutrition is causing me to lose my balance. I run into walls and doors and just fall down for no reason. All the calcium and protein is being pulled out of my muscles and bones. So my gastroparesis is nothing like yours and I wish I knew what to tell you that would help you but I have never heard of the symptoms you have and you probably have never heard of the ones I have. I hope you find help soon. It seems "I do care" has the same or a lot of the same symptoms as you. Just goes to show not every case of gastroparesis is the same.
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Old 07-25-2008, 07:11 PM
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I also suffer Gastroparesis. I have had it for about 4 years now.

The oesphagus can go into spasm with this disorder. So it is muscular but a Physio can do nothing to help.
It is extremely painful.
It feels as if you are getting ripped apart in the chest area through to your back.

The only thing that will give relief is a muscle relaxant, such as Medazalam. It is a powerful muscle relaxant and only used in a hospital.
A strong dose of Valium can ease the pain enough that you can cope with it again.

A lot of Doctor's are ignorant to oesphageal spasm. What it is? What causes it? And how to treat it?
It took many a long time to find the right combination of meds to ease mine. Which is 15mg of Morphine and 2mg of Medazalam.
I also have a Neurostimulator implant to control the oesphageal spasm.

Medtronic makes a stomach pace maker to help in Gastroparesis.

You can e-mail me through my profile and chat if you want.

I understand exactly what you are going through.
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